Why are Monday's so hard? We had a good weekend celebrating Robby's birthday but it was a long one. We also had a good day at church yesterday. Our revival started yesterday and it was good but it was a long day because we didn't get to come home. That is probably why I was so exhausted today.
Peyton is finally getting over his strep and starting to act like himself again. Our mission is to keep him well for the next two weeks. Our pre-op is two weeks from today. We have a room in Atlanta for his surgery. My wonderful Aunt's reserved us a room so that we wouldn't have to get up so early the morning of his surgery and would have a place to rest or shower if need be. I am sure I am not going to leave his side, but just in case we have a room!!
No therapy this week! I hate "no therapy" weeks. I will be glad when are back on our regular schedule. I thought I would dread going to Atlanta, and now Macon, every week but I love it. It gives us someone to talk to about Peyton and the crazy things he does and she understands us and him. Can you believe it....someone who actually understands us!
If any of you are interested in purchasing a raffle ticket to support the Auditory Verbal Center, let me know. AVC is where Peyton goes to therapy and they are an amazing group of people. AVC never turns anyone away because they can't pay and all proceeds from the raffle go to their scholarship fund. The raffle tickets are for a one week stay in Orlando and 4 one day Disney Park Hopper Passes. They are $5 each or 5 for $20. If you want one give me a call or send me a message. Thursday will be the last day I will be selling them. Thanks to all of you that have bought tickets so far. You are supporting a wonderful program and I greatly appreciate it!
Ok prayer warriors keep those prayers a coming. I am starting to get nervous which is to be expected when the are going to operate on your baby! I know, without a doubt, that we are doing the right thing (and Candace....so does Robby!). Love you all!!
This is a blog about a child with Auditory Neuropathy, which is very much a puzzle. This is the story of our journey through this process.
Monday, October 11, 2010
Thursday, October 7, 2010
Vaccinations........CHECK!
Well yesterday and today Peyton got the two vaccinations he needed to have before surgery. Yesterday he got the Prevnar 13 vaccine from the pediatrician and screamed bloody murder. Today he got the Pneumovax vaccine from the Oglethorpe County Health Department and only cried a little and then he signed "thank you" to the nurse that gave him the shot. My baby has manners even when someone hurts him!! So slowly but surely we are marking off all of our pre-surgery duties. Now if we can just keep him well until our surgery date, everything will be great!!
We also schedule Peyton's initial cochlear implant activation today. His CI will be activated on November 18th at 3:30 pm. It is all becoming very real now. I was thinking today coming home from work that 3 weeks from today the surgery will be over. Now that's a good feeling! Thanks everyone for all of the prayers. We can really feel them. I have a peace about this surgery that I know can only come from God. Keep sending them our way. We love you all!!
We also schedule Peyton's initial cochlear implant activation today. His CI will be activated on November 18th at 3:30 pm. It is all becoming very real now. I was thinking today coming home from work that 3 weeks from today the surgery will be over. Now that's a good feeling! Thanks everyone for all of the prayers. We can really feel them. I have a peace about this surgery that I know can only come from God. Keep sending them our way. We love you all!!
Tuesday, October 5, 2010
3 Weeks and Counting!!
Well we are on the count down to surgery. I cannot believe that in 3 weeks we will be in Atlanta getting ready for our sweet little man's 1st cochlear implant. HOW EXCITING!?!?!?! I can't wait to hear my baby boy to say "Mommy" and I praying and believing that this is going to happen.
I spent most of the morning trying to find a vaccine that Peyton needs before surgery. I was told that it would not be a problem, but that was not the case. It is really sad that your local health department will not give Peyton the vaccination because we have insurance. I always thought that having insurance was a good thing! Anyway, thanks to a great pediatrician and his wonderful staff the vaccine has been located and Peyton will be getting it tomorrow afternoon.
We had therapy today. We have only been going every other week until after surgery and I am ready to start back every week. Yes, it is tiring but like I've said so many times before, Candace is like our family therapist and I think I need it as much as Peyton does. Peyton did a really good job today. He had not taken a nap today and did not sleep any on the way so we were a little worried but he did good. He did a GREAT job discriminating today and he even imitated several sounds. He had never done this during therapy! We were really proud of him. It's amazing the progress he has made in a year. Of course he's worked really hard and, bless his heart, the hard work is far from over. But thanks to an amazing therapist, Robby and I have have tons of fun activities that we do with him at home that he has no idea that he is even working! We also have the help and support of family and friends. We are truly blessed.
Well Peyton is sound asleep and so it's time for some "me" time. Good Night!!
I spent most of the morning trying to find a vaccine that Peyton needs before surgery. I was told that it would not be a problem, but that was not the case. It is really sad that your local health department will not give Peyton the vaccination because we have insurance. I always thought that having insurance was a good thing! Anyway, thanks to a great pediatrician and his wonderful staff the vaccine has been located and Peyton will be getting it tomorrow afternoon.
We had therapy today. We have only been going every other week until after surgery and I am ready to start back every week. Yes, it is tiring but like I've said so many times before, Candace is like our family therapist and I think I need it as much as Peyton does. Peyton did a really good job today. He had not taken a nap today and did not sleep any on the way so we were a little worried but he did good. He did a GREAT job discriminating today and he even imitated several sounds. He had never done this during therapy! We were really proud of him. It's amazing the progress he has made in a year. Of course he's worked really hard and, bless his heart, the hard work is far from over. But thanks to an amazing therapist, Robby and I have have tons of fun activities that we do with him at home that he has no idea that he is even working! We also have the help and support of family and friends. We are truly blessed.
Well Peyton is sound asleep and so it's time for some "me" time. Good Night!!
Saturday, October 2, 2010
Light at the end of the tunnel.
Well after 7 weeks of being in a hard cast I have now graduated to a boot. I can now put some pressure on my leg and can get around a lot better. Now it's Robby's turn to act up. We found out this week that he has VERY high bloodpressure and a hernia so he is now on BP meds and will be facing surgery the first of the year. It's ALWAYS something in the Duvall house.
Not a lot of changes with Peyton. He is making tons of vocalizations and they are very intentional. He is trying to talk and expects you to understand what he is saying. We are now under the 1 month mark until surgery. We are nervous and excited at the same time. Please continue to keep us in your prayers and our big day approaches.
Not a lot of changes with Peyton. He is making tons of vocalizations and they are very intentional. He is trying to talk and expects you to understand what he is saying. We are now under the 1 month mark until surgery. We are nervous and excited at the same time. Please continue to keep us in your prayers and our big day approaches.
Wednesday, August 11, 2010
You've got to be kidding me!!!
Ok.....so it's not like my family does not have tons going on right now with Peyton's surgery coming up and the start of a new school year in a brand new class.....but now I am totally useless! Today at recess I slipped on some loose gravel and as I hit the ground heard a "snap". Well that snap was my leg breaking in two places. Both bones in my leg broke at my ankle so I am now an crutches and with a two year old that means I am pretty much useless. I can't do ANYTHING but sit in the recliner. You know, I have always thought that would be nice, but it's HORRIBLE!!! Thank goodness that God has blessed me with a wonderful husband that has waited on me hand and foot since we left the hospital. I guess now I will take some pain medicine and go to bed (that's all I can do!!). I have to go to the orthopedic doctor in the morning to see the extent of my injuries. Please pray that I don't have to have surgery!
Sunday, August 1, 2010
Last Hoorah!!
Well we just returned from Tybee Island where we spent 3 wonderful days on the beach. This was my last "hoorah" before starting back to school tomorrow! We had a blast. Peyton absolutely loves the beach and had a great time playing in the sand and in the ocean. I don't know who had more fun in the sand, Peyton or his daddy. Gran Gran and Grandpapa (Robby's parents) went with us and they really enjoyed seeing Peyton playing on the beach.
Tomorrow it's back to the grind. I am looking forward to a new school year but not looking forward to leaving my sweet little man at all. I have really enjoyed spending the summer with him and he's grown extremely attached to his mommy so tomorrow may be rough on Daddy and Peyton. I am looking forward to working with my new kids though. I am now going to be teaching the adaptive curriculum classroom and I am VERY excited about that. I am going to miss Preschool but you do what you have to do. I am also excited about my new parapro, Karen Bufford. She is going to be wonderful, but I am going to miss my old parapro, Jennifer. So there will be a lot of changes but change isn't always a bad thing, right?
As far as Peyton goes, we are anxiously awaiting our surgery date! We will only be going to therapy every other week until then. This is because we have really done all we can do until Peyton has more access to sound and language. That does not mean that therapy stops at home though! We will be working really hard still and counting down the days until he has his first Cochlear Implant.
Thursday, July 22, 2010
Sorry!!
Well it's been almost a year since my last post! I have now committed to sitting down at least once a week and updating our blog. Of course tons have happened since my last post....so much I don't know where to begin.
Peyton received hearing aids in February of this year. They are giving him a lot of receptive benefit but still isn't getting the language that we need. We still don't have any expressive language (with the exception of the few signs he uses). We are still receiving AV therapy once a week, but we now go to Macon for these services because our wonderful therapist transferred there. The drive is actually much better and we would go to the moon to be able to see Candice. In June, we returned to see Dr. Todd for a check-up and it was at that time that he told us it was time to move on. So we immediately began the Cochlear Implant process. We saw Jolie (an audiologist at CHOA) for his initial work up and she began the insurance process. That was a two week process and today we got a surgery date of Oct. 27th. Yes...I know....that is the Wednesday before Georgia/Florida but the DAWGS are just going to have lose without us this year.....my baby is more important. Until then we will continue doing what we have been doing. We are still doing therapy at home but instead of it being a set time each day it has come more a way of life. Don't get me wrong....we still have times that we sit down and really work on our skills and function words for the week, but it is a continual process. It NEVER ends!!
That is the medical update....since my last post Peyton has turned 2. He is every bit of 2 and into everything with the attitude to go with it. We have had a great summer but have stayed really busy. It will be time to go back to work in a little over a week and I'm not looking forward to it at all. I will post some updated pictures soon. Again, I am sorry it has been so long in between posts and I will do better!!
Peyton received hearing aids in February of this year. They are giving him a lot of receptive benefit but still isn't getting the language that we need. We still don't have any expressive language (with the exception of the few signs he uses). We are still receiving AV therapy once a week, but we now go to Macon for these services because our wonderful therapist transferred there. The drive is actually much better and we would go to the moon to be able to see Candice. In June, we returned to see Dr. Todd for a check-up and it was at that time that he told us it was time to move on. So we immediately began the Cochlear Implant process. We saw Jolie (an audiologist at CHOA) for his initial work up and she began the insurance process. That was a two week process and today we got a surgery date of Oct. 27th. Yes...I know....that is the Wednesday before Georgia/Florida but the DAWGS are just going to have lose without us this year.....my baby is more important. Until then we will continue doing what we have been doing. We are still doing therapy at home but instead of it being a set time each day it has come more a way of life. Don't get me wrong....we still have times that we sit down and really work on our skills and function words for the week, but it is a continual process. It NEVER ends!!
That is the medical update....since my last post Peyton has turned 2. He is every bit of 2 and into everything with the attitude to go with it. We have had a great summer but have stayed really busy. It will be time to go back to work in a little over a week and I'm not looking forward to it at all. I will post some updated pictures soon. Again, I am sorry it has been so long in between posts and I will do better!!
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